價格：免費
更新日期：2019-01-28
檔案大小：31M
目前版本：5.40
版本需求：Android 6.0 以上版本
官方網站：http://ncats.nih.gov
Email：ncats.itrb@gmail.com
聯絡地址：隱私權政策
Sponsored by the National Center for Advancing Translational Sciences and Clinical Center at the National Institutes of Health (NIH), Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations under way to address scientific challenges and to advance new treatments. The goals are to:
● Demonstrate the NIH commitment to helping people with rare diseases through research.
● Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
● Initiate a mutually beneficial dialogue among public and private researchers, patients, patient advocates, and policymakers.
● Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
● Put a face on rare diseases by sharing stories of patients, their families, and their communities.